Instagram Top 25 Cystic Fibrosis Influencers in 2024

Top 25 Cystic Fibrosis Influencers in 2024


Name: 1. Jess Meyrick

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Bio: 3 years old // Cystic Fibrosis.Medical Mama – Certified in Early Years Childcare. @littledreamersnest Intentional parenting. Ask to repost

Instagram Handle: @thelittledreameruk

Instagram Followers: 259.2K

Name: 2. Sophie Grace Holmes

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Bio: April 2024: 36 Marathons 36 daysDefying the odds w/Cystic Fibrosis. Online Coach @saucony_eu Ambassador Enquires: @hyped_mgt

Instagram Handle: @sophiegraceholmes

Instagram Followers: 166.5K

Name: 3. Ben Mudge

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Bio: 12 years of coaching experience @morewarhammer Cystic Fibrosis Ambassador

Instagram Handle: @benmudge_

Instagram Followers: 120.3K

Name: 4. Mary Frey

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Bio: Sharing the ups and downs of life with Cystic Fibrosis with my husband @peterfreylife and son(Elijah) along with Ollie&Harry on Youtube TheFreyLife!

Instagram Handle: @freyliving

Instagram Followers: 78.3K

Name: 5. Caleigh Sarah Haber

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Bio: Health is Hot Patient Advocate || Rare + Genetic DiseaseWriter Speaker Survivor♻️2x Dbl Lung Transplant Cystic Fibrosis Diabetes

Instagram Handle: @fight2breathe

Instagram Followers: 72.6K

Name: 6. Kate Eveling

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Bio: feel a little less alone & a little more connected founder of @evidentlyican cystic fibrosis

Instagram Handle: @thevftos

Instagram Followers: 61.6K

Name: 7. Julia Rae

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Bio: actor • writer • #cysticfibrosis advocate • @singingatthetopofmylungs • 2024 Bride ️: @deeperlookpod @playingthroughmovie

Instagram Handle: @itsjuliarae

Instagram Followers: 51.2K

Name: 8. Jennifer Nelson

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Bio: 25, with cystic fibrosis, diabetes, TPN, ileostomy, EDS-V & more.✨your words can break or build someone. choose wisely.✨TikTok: Battling2Breathe

Instagram Handle: @battling2breathe

Instagram Followers: 22.5K

Name: 9. Ryan Mo

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Bio: Christ Follower ✝️Cystic fibrosis Advocate@elysium.athletic Code:Mo

Instagram Handle: @ryan_mo15

Instagram Followers: 19.4K

Name: 10. Mandie Rudd

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Bio: Thriving while fighting Cystic Fibrosis Navigating Grief and Life After Loss ️Speaking Engagements : Click link to book ↓

Instagram Handle: @shermanmandie

Instagram Followers: 12.3K

Name: 11. Gunner Esiason

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Bio: Saved by science Patient advocate Dad to Blinky, Blitzen & Kaz BC ➡️ Dartmouth #cysticfibrosis

Instagram Handle: @esiason17g

Instagram Followers: 12.2K

Name: 12. Salty Cysters

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Bio: •Lea & Tiff•Cystic Fibrosis Fighters•Podcast Hosts @breathe_in_pod •Bicoastal Cysters w/ a passion to help the CF & chronic disease community

Instagram Handle: @saltycysters

Instagram Followers: 11K

Name: 13. Jamesrich

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Bio: • Cystic Fibrosis Warrior/Advocate• Creator/Owner of @insight__fitness • Master trainer/ coach

Instagram Handle: @jamesrich23

Instagram Followers: 8.3K

Name: 14. Chelsea Stahl

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Bio: Sharing the journey of life and motherhood living with cystic fibrosis ‍♀️ Yoga studio owner & teacher in the US Virgin Islands

Instagram Handle: @salty_yogi

Instagram Followers: 5.6K

Name: 15. Thomas John

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Bio: •@cf_ireland Ambassador •Advocate • /Cystic Fibrosis•T1Diabetic/Tourettes•@hairartist_tom_pelo_dollLiloDogDad

Instagram Handle: @thomasjhenry87

Instagram Followers: 5.4K

Name: 16. Alexie Babin

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Bio: POV story of my lifeCystic fibrosis – Epilepsy – Addison’s Disease Death is inevitable, live a life you’re proud of

Instagram Handle: @alexie.babin

Instagram Followers: 4.7K

Name: 17. Jamie

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Bio: , & #caringforthecaregiver ✨Overwhelm➡️Productive✨Cure CFGet my emails

Instagram Handle: @drivingmissdesi

Instagram Followers: 2.6K

Name: 18. Lauren Black

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Bio: I’m an adult living with cystic fibrosis! Welcome to this side of my life ????

Instagram Handle: @laurenslifesavers

Instagram Followers: 1.3K

Name: 19. Jax

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Bio: Mum to George, 5 Ollie, 1 with cystic fibrosis Founder of @playshedpuzzles Lover of photography, travel & coffee Manchester, UK

Instagram Handle: @mummyinmanchester

Instagram Followers: 1.2K

Name: 20. Ella Balasa

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Bio: ‍Patient Advocate and Engagement ConsultantHealthcare CollaboratorSpeaker Writer cystic fibrosis Personal: @thisgirlellaFind my work

Instagram Handle: @ellabalasaadvocacy

Instagram Followers: 950

Name: 21. Osiris Daniels

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Bio: I have Cystic Fibrosis. I’m on Trikafta which has been life changing.Every end is a new beginning.

Instagram Handle: @a_cystic_life

Instagram Followers: 853

Name: 22. Manu

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Bio: Cystic Fibrosis fighterHooman mum of Ayla @ayla_the_chocolatelab ‍♀️Training and playing lover #fitcozza✨Enjoy life✨

Instagram Handle: @geneticwontknockmedown

Instagram Followers: 772

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